Mujer queda con cicatrices de por vida tras usar los médicos láser en su mancha de nacimiento

Decimos que el aspecto no es todo, ¿pero cuántas veces no miramos a una persona e inmediatamente formamos una opinión, buena o mala, basada en la apariencia?

Durante toda su vida, Tessa Schiethart ha tenido que aguantar que la gente la mire. Tessa, que nació en Amsterdam, nació con el síndrome de Sturger-Weber, una condición que afecta ciertos vasos sanguíneos. Se caracteriza por una mancha de nacimiento y anormalidades neurológicas.

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Today it is #internationalwomensday ! On this International Women’s Day, ask yourself what it means to be a woman. Or what all the women around you mean to you. This weekend, I went to an exhibition at @tropenmuseum. It was called A Genderful World and perfectly demonstrated how gender can be culturally defined. As being a woman is not only defined by sex, but also by gender, it was very interesting. There are so many countries in this world that have more than 2 genders, where gender is not a binary thing. What do you identify as? Is that accepted in your society and in your culture? How does the role of women in your society differ from that of men? In some cultures, some genders have a spiritual or holy role. In Mexico there is the ‘muxe’: men who take on the role of a woman, not because they identify as women, but because they take up all the ‘traditional’ roles ascribed as female. In many countries of South Asia, there are hijra’s; men-to-women transgenders. There is still a lot of inequality for women in many countries and regions. We still have a long way to go, and that is why it is so important to have a day like today. To look at where we can improve as a society, and as a global community. A lot is improving already too. Today is also a good day for me to announce that I am currently researching the difference of being a woman with a visible difference in comparison to being a man. Please send me an email at [email protected] if you want to share your views and experience with being a man or a woman with a visible difference. I am currently comparing it to the differences in beauty standard for men and women, to see if there are any conclusions to draw from this in tackling the #lookism issues (discrimination on the basis of looks)! All views welcome! 📷 by @sophiemayanne #womensday #8march #futurefemales #womenempowerment #femalemale #agenderfulworld #civilrightsforwomen #sexismofwomen #powerofparity #leanin #beboldforchange #i_weigh #diversityfashion #standforwomen

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Cuando nació, la madre de Tessa, Mariette Schiethart, se preocupó sobre cómo su hija sería recibida en público y cómo su condición afectaría su vida social.

Cuando tenía tres años, el médico de Tessa sugirió a sus padres que se sometiera a un tratamiento con láser para disminuir la mancha de nacimiento. Continuaron con el tratamiento, pero en lugar de aligerar la mancha de nacimiento, Tessa terminó con cicatrices. El tratamiento salió mal le y causó un daño horrible en la cara de Tessa.

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• repost of the amazing @mrelbank who I visited yesterday in London • PLEASE READ:- What an incredible day with the phenomenal @tofacetheworld who kindly visited from Amsterdam… I really have to say when Tessa and I spoke, being part of #Scars wasn’t on the agenda. . PLEASE READ – Tessa’s own words… “I was born with a port wine stain birthmark as part of the Sturge Weber Syndrom that I have. Doctors adviced to start with laser treatment when I was about six months old. At age two this went terribly wrong as the treatment severely burnt my birthmark resulting in scar tissue on my birthmark. The scars belong to me as much as my birthmark does. I have eye sight problem as a result of the syndrom i have and for me it is so much more important that I can see the world rather than spending my time treating my face for the sake of being seen differently in society. I invest time each day on my internal being, also as a means to relate healthily to my exterior. From my interest in how people see and are seen in society I focussed my research at university on this subject. Last year I conducted research on the experience of people with visible differences with stigma and discrimination. A very personal subject to me. It has been quite a journey meeting and speaking to special people with a variety of faces and it definitely formed my own journey and relationship to my birthmark. I believe in education and letting the world see and engage in diversity in all its forms and facets. In the future I hope to continue with this research and promote equal treatment and full acceptance of different facial and bodily looks in society. Because, as @mrelbank and I agreed on, below all that pigment we all have the same color, and with that, we should collectively move beyond those divisive features of humankind.” . . More from the wonderful Tessa. To apply to be part of the series please send an email to [email protected] #Mrelbank #Beauty #Portrait #Skin #PortWineStain #Photography #Hasselblad #London @hasselblad.

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“Cuando tenía seis años paramos el tratamiento con láser porque mis ojos se volvieron más importantes y había una presión ocular alta y necesitábamos bajarla para evitar que mi ojo izquierdo también se volviera ciego”, dijo a Barcroft TV.

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Pain in pictures. . . I have thought long and deep why this picture often gets me to cry when I see it. Even now, as I write this, the tears burn behind my eyes and there is a deep sense of sadness that comes up. Why? I have contemplated my childhood traumas lately In this picture I see a little one, just burnt after laser treatment gone terribly wrong. The scars that came from it intensified the severity of having a birthmark even more. Mostly I feel my parents’ pain. It is hard to write, but what I feel when I see this picture is mostly the hard times my parents have gone through with all the medical treatments that were suggested by the doctors. Parents who have and still do everything in their power to grow me in a happy, confident girl. Following the advice of doctors in treating the port wine stain and one day be sent home with a little one with blisters all over from the laser treatment that was suggested is not ok. When I see this picture I feel their hopelessness, the doubt and questioning whether their little one would be fine, and the tears stream down my face. . . A picture captures a moment in life. On @instagram we forget that life is in flux and we change moment to moment. In this very moment I am totally fine, happy, strong, with lots of hope. Pictures can bring up feelings that are still a part of you, that remain a part of you. But the reality is that the past turned into future. And I realize, all turned out perfect as it is. Still riding bikes and sometimes looking behind and seeing what is there to remind me of where I am going. ❤️ . . . #pictures #past #future #burned #markedbyaburningflame #portwinestain #portwinestained #faceequality #lasertreatment #sturgewebersyndrome #scars #visibledifference #facialdifference #tofacetheworld #facetheworld #birthmarkbliss #lookingbehind #reminiscing #toddler #burnsurvivor #facialtreatment #face #skincondition #skincare #lifeinpictures #bodypositive #bodyawarenessproject #bodypositivity #consciousnessshift

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Desde entonces, ha acogido su mancha de nacimiento, llegando incluso a convertirse en una “guía de vida”, también ha estudiado a personas que tienen diferencias visibles y los estigmas y la discriminación que enfrentan.

“Mi mancha de nacimiento y mi aspecto diferente nunca me han impedidoa perseguir mis sueños. He estudiado los estudios que quería, trabajo, tengo muchos amigos y he viajado sola por todo el mundo. Me encantan las pequeñas cosas de la vida y practico yoga todas las mañanas para establecer mi intención para el día”, dice ella.

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Pain is an interesting thing. Whether it is physical or non-physical pain. Some say pain is our biggest teacher, because through those moments we learn the most about ourselves, our actions and reactions to it. The last week I had a bit of a physical setback. I feel fine, but my back hurts when I practice yoga in the morning. The pain triggered a lot of resistance, doubt and sadness towards the practice and my body. It comes to everyone at some point. It triggers a lot more though, and I sometimes become a bit hypogondrous with it and start to doubt a whole lot of other things. Like my eyes, I start to think “Do I still see clearly?” and then I doubt that, and think I should obviously go to the hospital to check my glaucoma if the pressure is good. When I was young, there were times I was in the hospital every single day for my eyes or my port wine stain. Over the years it went from daily slowly to weekly, bi-weekly, monthly, and now since a couple of years my eyes have been so stable that twice a year is fine. But from going so often to the hospital, and now not, makes me panic sometimes. It requires much more self-inquiry to seperate false visions from right ones. Seperating doubt and insecurity from actual setbacks and, whenever something intensely physical comes up, work gently with it to figure out what it is you should clearly see. . . . . #glaucoma #eyes #thinking #treatment #birthmark #portwinestain #sturgeweber #portwinestainbirthmark #bareyourbirthmark #bodypositive #awareness #bodyawareness #flaws #yoga #ashtanga #practice #breathe #doubt #fear #practiceandalliscoming #walkthewalk #talkthetalk #hospital #checkups #eyes #vision

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“Elegí no pasar dos horas de mi mañana frente a un espejo poniéndome una máscara de maquillaje químico para cubrir mi mancha para que la ‘sociedad me acepte o para que encaje en algún estándar de normalidad.'”

Antes se ha maquillado, pero solo fue unas pocas veces, y ninguna de las veces estuvo satisfecha con el aspecto.

“No me reconocí en absoluto sin mi mancha, y ese era un sentimiento tan extraño.”

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What do we believe? We can be called certain words by certain people. It is only the words of the other we believe in that will hurt us. Before they have even said something, we already believe “You are not good enough”, “you look weird”, “you are too nice”. These are all examples that I have been told. In good situations, but also in abusive situations. The first and the third are things that I have believed. And have acted on. I have let things pass because I thought I wasn’t good enough for it. And I have done things for people where later my friends would say ‘you are too nice’, and I agreed. But only because I believed these words myself already. • . . At times I have been called the second one too. But with this I strongly believed, from a young age, there must be something with the person who speaks these words and I better act on that belief and stay the hell away. And I did. Maybe this is why I can recollect the truly abusive words that were spoken on my look to be about 7. 7 too many times, but I consider it quite a good number. 7 great lessons too. In these 7 incidents I can truly remember having felt hurt. In all those situations, I remember already having felt vulnerable on those days before it happened. It were confrontational moments, some intimate with (no longer) loved ones, other with total strangers. I think it is about our own beliefs we already have prior to what is said to us. . . .Often the words we use say a lot about us. The same accounts for the words that are spoken to us; it is a reflection of the person who says them. The only thing you are responsible for is how seriously you take some people’s words and how you weigh them onto yourself. • The thing I want to give to you is the question: do you really believe the words that come out of other people’s mouths about you? Why were you listening in the first place? Are you acting on those words? Do they influence your present moment? Why? And what are you without those words now in your mind? . . . • 📷 by the talented @jurian1975 • #words #wisdom #looks #mindovermatter #birthmarks #undermyskin #birthmarked #portwinestain #sturgewebersyndrome #faceequaljty #diversiteit.

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El objetivo de Tessa es inspirar a otros a ser los que son a pesar de las diferencias, reconoce que algún día todos encontrarán algún tipo de obstáculo, pero eso no debería obstaculizar los sueños de toda la vida.

“Vivimos en un mundo donde nos identificamos demasiado con nuestros cuerpos”, dijo ella. Creo que juzgamos demasiado la apariencia externa y hay una sensación de “normal” que simplemente no es real”.

“El término normal está tan sobrevalorado, no hay nada normal todos somos diferentes y algunos de nosotros nos vemos un poco diferentes por fuera.”

Qué bien, Tessa. Necesitamos a más personas positivas como tú en el mundo. Solo recuerda que Dios tiene un trabajo especial para ti que nadie más puede hacer.

Comparte la bonita historia de Tessa en Facebook, necesitamos más historias positivas.